Research Questionnaires
The Positive Psychology Outcome Measure (PPOM)
Measuring hope and resilience for people with dementia
The PPOM is a 16- item measure of hope and resilience developed by researchers at University College London (UCL) and the University of Nottingham. It was developed from 2014 - 2017 using both qualitative and quantitative methods. The hope subscale was adapted from the Herth Hope Index and the resilience scale was developed drawing on prominent resilience theories. People living with dementia and experts were involved at every stage of the development procedure. A paper describing the PPOM in more detail was published in Archives of Gerontology and Geriatrics in 2018.
In a research project with 225 people living with dementia across the United Kingdom (UK), the PPOM had excellent internal consistency (α = 0.94) and was moderately stable over a one-week period (ICC = 0.88). The PPOM was significantly correlated with established measures of both quality of life and depression, suggesting that hope and resilience may be a protective factor in wellbeing.
Example items
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I can see positive things in difficult situations
I can give and receive care/ love
I believe that each day has potential
I am an emotionally strong person
I am able to deal with whatever happens
The Engagement and Independence in Dementia Questionnaire (EID-Q)
Measuring activities of daily living, decision making, activity engagement, social support and reciprocity for people living with dementia
The EID-Q is a 26-item measure of social independence developed by researchers at University College London (UCL) and the University of Nottingham. It was developed from 2014 - 2017 using both qualitative and quantitative methods. People living with dementia and experts were involved at every stage of the development procedure and the measure was published in Dementia and Geriatric Cognitive Disorders in 2018.
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In a research project with 225 people living with dementia across the United Kingdom (UK), the EID-Q had excellent internal consistency (α = 0.921) and was moderately stable over a one-week period (ICC = 0.768). Further the measure was positively correlated with existing measures of quality of life and depression, suggesting that concepts in the EID-Q have significant implications for wellbeing in dementia.
Example items
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I can do activities that are important to me
I can make my own decisions as much as I'd like to
There are people I could ask for help if I need to
I can confide in my friends/ family
I have help the people I care about
The Positive Psychology Outcome Measure
(carer version)
Measuring hope and resilience for family carers of people living with dementia
Like the PPOM person with dementia version, this tool measures levels of hope and resilience but it has been assessed for family carers of people living with dementia. The carer version has 14 items and, in a study recently conducted, there were favourable psychometric properties.
In Development
Social Health in Alzheimer's and other Dementias
We will develop a measure of social health, beginning in 2023. Check back for more.
