No-one left to cope alone
Funded by the National Institute for Health and Care Research (NIHR), this project aims to begin developing a support package for people with dementia who have just received their diagnosis. The hope is that this support package can be used in memory clinics to help people manage the emotional impact of the diagnosis.
Current work
We have just finished recruiting for the first of our research studies. This was an online survey or a one-off interview with a researcher where we asked people with dementia and carers to reflect on the impact the diagnosis had on them and their families.
​
Recruitment for our second research studies is ongoing. As part of this we are speaking to three groups or stakeholders about their perceptions of post-diagnostic care in UK NHS services. If you are interested in participating, please get in touch using the email below. ​​
Previous work
Work officially began on NOLA in August of 2023. As part of Phase 1, we conducted two two systematic reviews of the literature. For our first systematic review, we sourced and evaluated all previous psychological interventions that are designed to support psychological adjustment to a diagnosis of a physical or mental health condition. From this, we hope to learn about successful previous interventions and use this evidence to begin developing the NOLA intervention.
​
In our second systematic review, we sourced all existing psychosocial interventions that aim to improve wellbeing for people with dementia. There are lots of interventions in this area, so in this review, we focused on identifying shared characteristics across successful intervention for people with dementia. Again, we hope to use this evidence to begin our own work on developing the NOLA intervention.
Contact
Are you a carer, person with dementia, healthcare or policy professional interested in hearing more? Please get in touch today.